Patient-Centered Outcomes Research Institute: Engagement in Research Program
The Patient-Centered Outcomes Research Institute (PCORI) awards support projects that encourage active integration of patients, caregivers, clinicians, and other healthcare stakeholders as integral members of the patient-centered outcomes research/clinical effectiveness research (PCOR/CER) enterprise.
PCORI funds projects that answer patient-centered questions about health and health care. By highlighting comparisons and outcomes that matter, PCORI expects research findings to inform decisions by patients, caregivers, clinicians, and other healthcare stakeholders. It is looking for projects that assess the benefits and harms of interventions related to preventive, diagnostic, therapeutic, or palliative care or the healthcare delivery system.
Effective engagement of patients and other stakeholders in research requires a well-thought-out plan. All applications for PCORI funding must include an engagement plan. Because PCORI recognizes that engagement can take many shapes, and it varies with the nature of the research, it does not require specific activities. Instead, it encourages applicants to bring their most creative engagement ideas forward. PCORI provides an engagement rubric online to aid in planning, conduct, and dissemination activities.
PCORI pays particular attention to:
- Conditions that affect large numbers of people across a range of populations
- Conditions that place a heavy burden on individuals, families, specific populations, and society
- Rare diseases, which are difficult to study
It also pays particular attention to a number of populations in making research funding decisions:
- Racial and ethnic minorities
- Older adults
- Residents of rural areas
- Individuals with special healthcare needs, including individuals with disabilities, individuals with multiple chronic diseases, individuals with rare diseases, and individuals whose genetic makeup affects their medical outcomes
- Patients with low health literacy/numeracy and limited English proficiency
- Lesbian, gay, bisexual, transgender (LGBT) persons
- Veterans and members of the armed forces and their families
Amount: $20,500,000 is available for awards of up to $250,000 each.
Eligibility: Nonprofit and for-profit research institutions; universities and colleges; hospitals and healthcare systems; laboratories and manufacturers; and units of state, local, or federal government.
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