U.S. Department of Health and Human Services: Enhancing Public Health Surveillance of Autism Spectrum Disorder
The purpose of this program is to enhance the capacity of surveillance programs to implement a population-based, multiple source surveillance program for autism spectrum disorder (ASD). The project will fund sites to participate in the Autism and Developmental Disabilities Monitoring (ADDM) Network and will enhance surveillance activities at both prior and newly participating sites through two funding components. Component A is required for all applicants, while applying for Component B funding is optional. Component A funds surveillance of autism spectrum disorder (ASD) among 4-year-old and 8-year-old children.
Component A activities include:
- Adhere to standardized ADDM Network methodology
- Renew or establish agreements for access to BOTH health and education data sources (electronic and paper records)
- Staff training and continued education
- Report clean, de-identified data with vital records/census linkages to CDC
- Submit at least two manuscripts
- Engage partners and stakeholders in activities aimed at increasing use of ADDM data
- Create and implement a strategic plan for performance monitoring and evaluation
Component B funds follow-up at age 16 years of children abstracted for ASD at age 8 years in 2010 and 2012, including collecting data on characteristics, functioning, and educational service delivery (including transition planning). These data will inform public health strategies to improve identification and services for children with ASD.
Amount: A total of $20,400,000 is available to make approximately 10 awards ranging from $525,000 to $775,000.
Eligibility: State, county, city, township, special district, and Native American tribal governments; independent school districts; public, private, and state controlled institutions of higher education; public and Indian housing authorities; nonprofit organizations; for profit organizations; small businesses; and individuals.
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